Infant faces death due to a rare genetic condition

(Kaieteur News) – Mitochondrial disease is a group of chronic, genetic disorders that happen when mitochondria—the energy factories in nearly every cell of the body—fail to produce enough energy for normal cell and organ function. In children, the disease can cause severe health challenges which can lead to death at any given moment.

This is the reality of baby Spencer and his mother Imarah Radix, a former Miss World Guyana who spent months in Colombia, where her son went under extensive observation and treatment for the disease.

Faced with the prospect of death of her infant due to his condition, Radix has launched a 2nd campaign to raise awareness and garner public financial support as the family plans to relocate permanently to the United Kingdom where treatment is more readily available.