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While the Government criticised the former People’s National Movement (PNM) administration for failing to improve the Children’s Life Fund Authority (CLFA), Opposition Senator Dr Amery Browne said many of the 80 rejected applications were due to bleak prognoses.
Making her maiden contribution in the Senate yesterday, Ministry of the People and Social Development’s Parliamentary Secretary, Dr Natalie Chaitan-Maharaj, revealed that several children died while awaiting approvals under the fund. She cited the 2022 case of 14-year-old Tristan Ramlochan, who succumbed to acute lymphoblastic leukaemia while waiting for funding and travel arrangements. Delays in his flight meant he became too ill to travel. Another child, Baby Miracle Cross, died in March 2016 while funds were still being processed.
Chaitan-Maharaj noted that while Canada’s Children’s Hospital Foundation and the UK’s NHS Rare Disease Fund typically take between seven and 14 days to process emergency approvals, the CLFA takes between two and four months.
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